The Rheumatologist

I don’t even know where to start. So much is happening so fast. After an almost 2 hour Dr meeting, I found out I have suspected fibromyalgia, Trochanteric Bursitis (inflammation of the hips), Rheumatoid Arthritis, or possible Ankylosing Spondylitis (A form of inflammation of the spine). Ankylosing is found mainly in men, but CAN be in women on rare occasions the Dr said. She knows for sure I have the hip inflammation and I will have steroid shots for that. I couldn’t have the shot today because the Dr wanted to wait for my HS surgery to heal more.

I have had a spine and hip X-Ray and blood work done today. They are checking my Uric Acid, Vitamin D, Rheumatoid factor quantitative, Erythrocyte Sedimentation Rate, and C Reactive Quantitative. I will be coming back in 2 weeks to find out for sure what kind of arthritis I have and start treatments. Bottom line, everything is in the air until the results come back.

I have been prescribed Cymbalta for the chronic pain and depression, but see the pain management clinic tomorrow for more advice and treatment for this and my hidradenitis.

I met with my Medication liaison today to fill out my Humira and Cymbalta financial assistance forms. I should get my medication in 1-3 weeks after all paperwork is received. She faxed all paperwork over so, it may happen soon!

Walmart had my Humira and Cymbalta all ready to go today, but I haven’t met my Medicaid spend down this month to have it covered. This kinda bums me out. I have 3 medications for my pain and Hidradenitis sitting at Walmart and I can’t afford them! I can’t even afford the $982 spend down each month. Do you know how frustrating it is to know you have pain and suffering relief waiting for you and you can’t get it? I’m sure most of the USA does. Walmart said my starter pack for Humira is over $1000! I have no choice but to pay the $40 next month for the antibiotic cream I need and wait for the Humira and Cymbalta assistance. Once approved, my meds will be mailed to my home for free each month.

All update again tomorrow after my pain management appointment.

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